We chronicle the epic struggle to get drugs that treat very rare diseases on the market, and the unintended consequence of that fight, which affected the cost of all kinds of drugs. This is a strange story that involves a hit 70s TV show, a fake march on Washington, a courageous advocate, a carnival concessions wholesaler, and a new drug law that helped a lot of people, made drug companies billions of dollars, and opened a whole can of worms.
Adapted from the new podcast An Arm and a Leg by Dan Weissmann
Orphan Drugs
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Kultur & GesellschaftWissenschaft & Technik
99% Invisible Folgen
Design is everywhere in our lives, perhaps most importantly in the places where we've just stopped noticing. 99% Invisible is a weekly exploration of the process and power of design and architecture. From award winning producer Roman Mars. Learn more at 99percentinvisible.org.
Folgen von 99% Invisible
772 Folgen
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Folge vom 14.11.2018Orphan Drugs
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Folge vom 06.11.2018Devolutionary DesignIt’s hard to overstate just how important record album art was to music in the days before people downloaded everything. Visuals were a key part of one's experience with a record or tape or CD. The design of the album cover created a first impression of what was to come. Album art was certainly important to reporter Sean Cole, one particular album by one particular band: Devo. This is the story of Devo’s first record and the fight over the arresting image of a flashy, handsome golf legend on the cover. Plus, Katie Mingle gets the backstory of the Langley Schools Music Project LP, a haunting and uplifting outsider artist masterpiece. Devolutionary Design Subscribe to SiriusXM Podcasts+ to listen to new episodes of 99% Invisible ad-free and a whole week early. Start a free trial now on Apple Podcasts or by visiting siriusxm.com/podcastsplus. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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Folge vom 31.10.2018A Year in the DarkEarly on the morning of September 20th, 2017, a category four hurricane named Maria hit the island of Puerto Rico. It was a beast of a hurricane -- the strongest one to hit the island since 1932. Daniel Alarcon went down to Puerto Rico to report on the aftermath of the storm. He wrote a piece for Wired about the almost year-long struggle to get power working on the island, and the utility worker who became a Puerto Rican folk hero. A Year in the Dark Subscribe to SiriusXM Podcasts+ to listen to new episodes of 99% Invisible ad-free and a whole week early. Start a free trial now on Apple Podcasts or by visiting siriusxm.com/podcastsplus. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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Folge vom 23.10.2018Welcome to Jurassic ArtAt least for the time being, art is the primary way we experience dinosaurs. We can study bones and fossils, but barring the invention of time travel, we will never see how these animals lived with our own eyes. There are no photos or videos, of course, which means that if we want to picture how they look, someone has to draw them. The illustrated interpretation of dinosaur morphology and behavior has had a big impact on how the public views dinosaurs and it's gone through a couple of key turning points, including a more recent push for more speculative paleoart. Welcome to Jurassic Art Subscribe to SiriusXM Podcasts+ to listen to new episodes of 99% Invisible ad-free and a whole week early. Start a free trial now on Apple Podcasts or by visiting siriusxm.com/podcastsplus. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.